Tim Wotton challenges 400 of Guernsey's top sports men, sports women and guests, including the Lieutenant Governor Vice Admiral Sir Ian Corder KBE CB and the Bailiff, Sir Richard Collas to take part in a Cystic Fibrosis #breathe with me strawfie challenge. View Tim's entire motivational speech here; https://www.youtube.com/watch?v=OVxxMzxXWwE The following day Tim was a guest [...]
CF Guernsey are very proud to have sponsored the guest speaker and CF sufferer Tim Wotton at the Guernsey Sports Commission, Sporting Achievement Awards 2017. Tim produced a series of strong messages that sum up the value of sport, "A champion is someone who gets up even when he can't", "Sport has literally saved my [...]
Tim Wotton's poignant blog "Postcards from Earth", challenges us all to consider our own personal resilience, as he reflects on a 46th year fighting his own very personal battle with CF and CF related diabetes. I can't recommend enough taking the time to visit his blog page. https://timwotton.wordpress.com/2017/12/07/one-more-try/
Cystic Fibrosis Guernsey are pleased to announce that we are sponsoring the guest speaker at the Guernsey Sports Commission's 2017 'Sporting Achievement Awards' on a special evening to celebrate the triumphs of our competitive sportsmen and women. The guest speaker is a good friend of ours, Tim Wotton. Tim represented England playing hockey as a youth. [...]
On behalf of our CF families, CF Guernsey would like to welcome Dr Clare Betteridge to the Medic Specialist Group and Guernsey. We look forward to meeting you soon and working with you to do what ever we can to improve the quality of life for those affected by CF in the Islands. Mike Read [...]
Collectively, the Trials Accelerator centres will provide improved access to clinical trials for over 6,000 people; more than half of the UK population of people with cystic fibrosis. Southampton General Hospital is on this list. For more information click on this link; https://www.cysticfibrosis.org.uk/news/announcing-the-first-clinical-trial-accelerator-platform-centres Next time you are at the clinic in Southampton ask your consultant [...]
GOOD NEWS. We all know how our schools and education authorities react to 'unauthorised absences' yet for those children with CF who spend weeks at a time in hospital receiving treatment it can feel like their school and the 'system' conveniently forget about them and ignore their educational needs. After concerns raised by some of [...]
On Tuesday 24th January, Serena Wilson & Sandra Howarth, Community Development and Fund Raising Managers for the CF Trust, flew in to meet with the trustees of CF Guernsey. A Jersey father of a CF teenager was also able to join us via video link. This may not seem particularly significant until you know that [...]
Local girl, Courtney Read (20 years old), who was born with the life limiting genetic condition Cystic Fibrosis (CF), has been given the opportunity to play her part in steering the future direction of clinical trials and research into CF nationally. The James Lind Alliance Priority Setting Partnership (PSP), supported by the CF Trust and [...]
Philip Grosset, who has cystic fibrosis, was been awarded £180,000 after being fired from the Joseph Rowntree School in York. A judge found the school guilty of “serious and substantial acts of discrimination”. The former Head of English is expected to be compensated further for his loss of pension, and the senior leadership team and [...]
