Stopping the Clock on CF

Cystic Fibrosis Channel Islands wants a potentially life changing drug made available across the Channel Islands, but Orkambi is not available on the NHS – Watch the interview with Courtney Read, a woman in Guernsey with CF, who is pinning her hopes on the drug being funded locally by clicking on the link to our Facebook page.

Orkambi is the first of a new type of life changing precision medicines. These new drugs target the genetic cause of CF not just the symptoms, stabilising or significantly reducing the decline of lung function. Sadly NICE  the organisation responsible for approving new drugs consider its cost to high, denying a life line to thousands across the UK.


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