Research Archives - Cystic Fibrosis

4 02, 2018

Guernsey’s Adult Respiratory Nurse Specialist reports on London CF Conference

Mike Read2018-02-04T14:22:59+00:00

CF Guernsey recently sponsored the presence of Rosemary Kealy, the Islands only adult respiratory nurse specialist, at the most recent CF Conference to be held in London. Her report follows. Recent advances in the management of Cystic Fibrosis - Effective Approaches for the Multidisciplinary Team Dr Andrew Jones discussed cystic fibrosis transmembrane conductance regulator (CFTR) modulators [...]

Guernsey’s Adult Respiratory Nurse Specialist reports on London CF ConferenceMike Read2018-02-04T14:22:59+00:00

4 02, 2017

What is SmartCareCF?

Mike Read2017-02-04T14:33:56+00:00

The rapid advance of smart technology and big data presents an extraordinary opportunity to improve and transform the lives of those with cystic fibrosis. Using commercially available devices, patients will be able to monitor their condition at home and liaise with their specialist health teams remotely. If proven, this model of care will reduce the risk of [...]

What is SmartCareCF?Mike Read2017-02-04T14:33:56+00:00

18 12, 2016

The Next Big Thing

Mike Read2016-12-18T15:13:09+00:00

Local girl, Courtney Read (20 years old), who was born with the life limiting genetic condition Cystic Fibrosis (CF), has been given the opportunity to play her part in steering the future direction of clinical trials and research into CF nationally. The James Lind Alliance Priority Setting Partnership (PSP), supported by the CF Trust and [...]

The Next Big ThingMike Read2016-12-18T15:13:09+00:00